> 1.When was your wife diagnosed with Sarc?
> 2.does she have any illnesses other than sarc?
not that we know of, although there have been
tentative/conflicting/rude/negligent diagnoses of Fibromyalgia, Lupus
and “it’s all in your head”
(her daughter and mother have had spinal/neurological problems – her
grandmother and great-grandmother have had what was thought to be an
arthritic type of problem, perhaps RA – one walked with a cane most of
her life, the other in a wheelchair)
> 3.Is she on any other medication than Minocycline?
Benicar 40mg 3x daily
> 4.What dosage has she started with?
she started Mino at 25mg (after being on Benicar for 1 week), then
jumped to 50mg (for a few short weeks), then to 100mg which she’s on
now (always every 2 days)
> 5.when did she begin having problems walking?
> 6.What type of pain meds. is she using and how effective are they?
suffice it to say that Neurontin and Morphine do nothing for the pain
- within about 60 minutes of taking her pain med, she can walk fairly
normally – without it, she usually limps very badly and must slide on
her bum down the stairs
> 7.when did the constant pain in her joints, bones, muscles begin?
sometime in 2002
> 8.when did the headaches begin?
around 1996 she started having constant headaches
(lower back pains since 1985, but not constant)
> 9.when did the weakness and fatigue begin?
> 10.when did the vision problems,
> 11.Does she have sarc in her eyes?
we’re not sure, but a doc said she has a blood clot in one of the eyes
> 12.when did the swallowing and breathing problems begin,
> 13.Does she have sarc in her lungs?
yes – biopsy-confirmed
> 14.when did the bladder control difficulties start?
The only symptom which had dramatically improved is the breathing
difficulties (which did so after eliminating Vitamin-D from her diet
and minimizing sunlight and before starting the MP – however, she
does still feel her throat close up on occasion but not as bad as
before) – it was rather frightening at its worst (checked into ER once
because of it).
Swallowing and bladder control are a little bit better. She also has
temperature regulation problems, profuse sweating and dizziness and
nausea (the latter two seem to be tolerable when she takes a glass of
V8 with the Benicar). I believe someone at the marshallprotocol forum
mentioned the V8 trick. She’s measured her blood pressure fairly
regularly while on the MP and it has always been normal.
Hope this helps.
She had very bad reactions to her flu shot fall 2003 and tetanus shot
at Christmas 2003 – both started within several hours of the shot and
lasted a few short days – pretty consistent with Herxheimer. She also
had a very bad respiratory reaction to a 3D CT scan dye in January
2004 within seconds of it being administered and lasted several more
seconds (couldn’t breathe) – she wasn’t too well for the next few days
which may have had nothing to do with the dye but we’ll probably never
know – she’d had the shots and dye in the past without problems.
My wife has just started phase II of the MP – she’s now introduced
Zithromax which will be taken every 8 days, starting at 62mg, along
with the Benicar and Minocin.